Tina Cook
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CURRENT PROJECTS:
Healthy Communities through Integrated, Participatory Health Promotion Strategies (PartkommPlus)
PartKommPlus examines how German integrated municipal health promotion strategies can be successfully developed and implemented sustainably. There are two goals:
- The acquisition of new and comprehensible (evidence-based) knowledge about the conducive and inhibitory conditions for successful participation in community health promotion.
- Further developing participation health research as a health science approach in the field of health promotion in Germany
Lead: Professor Michael Wright
Patient and Public Involvement: IGNITE
Working with the University of Limerick The objective is to develop capacity for meaningful patient and public involvement in health research with a particular focus on participatory approaches.
Lead: Professor Anne MacFarlane
PREVIOUS PROJECTS (selected):
Family based support to build capability and resilience in family carers of adults with learning disabilities and challenging behaviours: collaborative research.
Aims: To understand the basis of success for a programme that supports the capabilities and resilience of parents caring for an adult son/daughter with learning disability and behaviour that challenges. The focus of this programme is Positive Behaviour Support with Acceptance and Commitment Therapy with mindfulness as a key part.
Towards Inclusive Living: A Case Study of the impact of Inclusive Practice in Neuro-Rehabilitation/Neuro-Psychiatry Services
(with UKPRN member Helen Atkin)
The aim of this study was to explore how feelings of inclusion effect ways in which people who use neurological/neuropsychiatric services are engaged with the NHS community and how they understand and use the knowledge from that engagement to improve the quality of their lives.
To read more about the study please go to: http://www.ltnc.org.uk/research_files/impact_inclusive.html
Embedding Research Impact: Assessing Participatory Research Impact and Legacy. A Case Study
(with UKPRN members Jonathan Boote, and Vougioukalou, S)
This study looked at the issue of how, with the increased adoption of research approaches that move beyond collecting expert testament to embedding the knowledge of those whose lives or work are the subject of the study as part of the research process, there has been an increased awareness of the need for applied research to go beyond being predominantly a tool for knowledge collection, ie for research to be more directly connected to a change process; to make a difference to communities; to have an impact. It suggests that the wide and imprecise use of the term ‘participatory’ has, however, led to difficulties in articulating expected impact from such research practices. This creates difficulties in relation to recognising linkage between participation and impact and building a body of knowledge to share and learn about impact.
PUBLICATIONS:
Journal Articles (selected)
Lenette C, Stavropoulou N, Nunn C, Kong S.T, Cook T, Coddington K & Banks S. (2019) Brushed under the carpet: Examining the complexities of participatory research. Research for All, 3 (2): 161–79. DOI https://doi.org/10.18546/RFA.03.2.04
Cook T, Noone S & Thomson M (2019) Mindfulness‐based practices with family carers of adults with learning disability and behaviour that challenges in the UK: Participatory health research. Health Expectations 22, 802-812. https://doi.org/10.1111/hex.12914
Cook T, Brandon T, Zonouzi M & Thomson L (2019) Destabilising Equilibriums: harnessing the power of disruption in participatory action research Educational Action Research, 27:3, 379-395, DOI: 10.1080/09650792.2019.1618721
Harris J, Cook T, Gibbs L, Oetzel J, Salsberg J, Shinn C, Springett J, Wallerstein N & Wright M (2018). Searching for the Impact of Participation in Health and Health Research: Challenges and Methods. BioMed Research International, Vol 2018, Article ID 9427452
Cook T, Atkin, H & Wilcockson, J (2018). Participatory Research into Inclusive Practice: Improving Services for People with Long Term Neurological Conditions. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, Vol 19 (1) Art. 4.
Cook T, Boote J, Buckley N, Vougioukalou S & Wright, M (2017) Accessing Participatory Research Impact and Legacy: Developing the evidence base for participatory approaches in health research. Educational Action Research Vol 25 (4) pp473-488
Abma T, Cook T, Rämgård M, Kleba E, Harris J & Wallerstein N (2017) Social Impact of Participatory Health Research: Collaborative Non-linear processes of Knowledge Mobilisation. Educational Action Research Vol 25 (4) pp489-505
Cook T (2012) Where Participatory Approaches Meet Pragmatism in Funded (Health) Research: The Challenge of Finding Meaningful Spaces. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, Vol 13(1), Art. 18. DOI: http://dx.doi.org/10.17169/fqs-13.1.1783
Cook, T & Inglis, P (2012) Participatory research with men with learning disability: informed consent. Tizard Learning Disability Review. Vol 17 (2) pp 92 – 101
Cook, T (2009) The Purpose of Mess in Action Research: building rigour through a messy turn. Educational Action Research Vol 17(2) pp277-292.
Cook, T. (2006) Collaborative action research for development and evaluation: a good fit or the road to myopia? Evaluation Vol 12(4) pp418-436.
Cook, T. (2004) Reflecting and learning together: action research as a vital element of developing understanding and practice. Educational Action Research Vol 12 (1) pp77-97.
Cook, T. (1998) The Importance of Mess in Action Research. Educational Action Research Vol 6 (1) pp93-108.
Book Chapters
Abma T, Banks, S, Cook T, Dias S, Madsen, Springett J & Wright M. T (2019) Researching for Change. Participatory Approaches for Health and Wellbeing. Pub: Springer, Germany
Kongats K, Springett J, Wright M T & Cook T (2018) Demonstrating Impact in Participatory Health Research (2018) In Michael T Wright & Krystyna Kongats (eds) Participatory Health Research: Voices from Around the World. Springer: Berlin pp 55-69
Wright M T, Cook T, Springett J & Kongats K (2018) Building Consensus, Celebrating Diversity: The International Collaboration for Participatory Health Research. In Michael T Wright & Krystyna Kongats (eds) Participatory Health Research: Voices from Around the World. Springer: Berlin pp 17-24
Cook T (2016) Working at the intersection: partnerships as participatory mechanisms for disruption: In Jane Moore and Philp Bamber (eds) Teacher Education in Challenging Times: lessons for professionalism, partnership and practice. Taylor and Francis. Pp 83-93
Wright M. T, Cook T, Springett J, & Roche B. (2014) The International Collaboration for Participatory Health Research: Legitimating the Science and Ensuring Quality: In Thomas Stern, Andrew Townsend, Franz Rauch and Angela Schuster (eds) Action Research, Innovation and Change: International perspectives across disciplines London: Routledge
Cook T. (2011) Authentic Voice: The Role of Methodology and Method in Transformational Research: In Warren Kidd and Gerry Czerniawski (eds) The Student Voice Handbook Emerald Press pp 307-320
International Collaboration for Participatory Health Research Position Papers
International Collaboration for Participatory Health Research (ICPHR) (2013) Position Paper 1: What is Participatory Health Research? Editorial Group: Michael T. Wright, Germany (lead); Irma Brito, Portugal; Tina Cook, UK; Janet Harris, UK; Maria Elisabeth Kleba, Brazil; Wendy Madsen, Australia; Jane Springett, Canada; Tom Wakeford, UK www.icphr.org
International Collaboration for Participatory Health Research (ICPHR) (2013) Position Paper No. 2: Participatory Health Research. A guide to Ethical Principles and Practice Editorial Group: Sarah Banks, UK (lead); Irma Brito, Portugal; Tina Cook, UK; Felix Gradinger, UK; Jane Springett, Canada; Hella von Ungar, Germany; Michael Wright, Germany. www.icphr.org
International Collaboration for Participatory Health Research (ICPHR) (2020) Position Paper 3: Impact in Participatory Health Research (2020) Editorial Group: Tina Cook: UK (Lead), T. Abma, Netherlands, Tanja Gangarova, Germany, Janet Harris: UK, Siobhan Higgins: Ireland, John Oetzel: New Zealand, Sebastian von Peter,Germany, Brenda Roche, Canada, Payam Sheikhattari USA, Amy Schultz USA, Jane Springett Canada. Nina Wallerstein, New Mexico. www.icphr.org,
Boote, J. Cook, T and Harris, J (2012) International Collaboration for Participatory Health Research (ICPHR) INVOLVE Newsletter, Eastleigh, UK.
Healthy Communities through Integrated, Participatory Health Promotion Strategies (PartkommPlus)
PartKommPlus examines how German integrated municipal health promotion strategies can be successfully developed and implemented sustainably. There are two goals:
- The acquisition of new and comprehensible (evidence-based) knowledge about the conducive and inhibitory conditions for successful participation in community health promotion.
- Further developing participation health research as a health science approach in the field of health promotion in Germany
Lead: Professor Michael Wright
Patient and Public Involvement: IGNITE
Working with the University of Limerick The objective is to develop capacity for meaningful patient and public involvement in health research with a particular focus on participatory approaches.
Lead: Professor Anne MacFarlane
PREVIOUS PROJECTS (selected):
Family based support to build capability and resilience in family carers of adults with learning disabilities and challenging behaviours: collaborative research.
Aims: To understand the basis of success for a programme that supports the capabilities and resilience of parents caring for an adult son/daughter with learning disability and behaviour that challenges. The focus of this programme is Positive Behaviour Support with Acceptance and Commitment Therapy with mindfulness as a key part.
Towards Inclusive Living: A Case Study of the impact of Inclusive Practice in Neuro-Rehabilitation/Neuro-Psychiatry Services
(with UKPRN member Helen Atkin)
The aim of this study was to explore how feelings of inclusion effect ways in which people who use neurological/neuropsychiatric services are engaged with the NHS community and how they understand and use the knowledge from that engagement to improve the quality of their lives.
To read more about the study please go to: http://www.ltnc.org.uk/research_files/impact_inclusive.html
Embedding Research Impact: Assessing Participatory Research Impact and Legacy. A Case Study
(with UKPRN members Jonathan Boote, and Vougioukalou, S)
This study looked at the issue of how, with the increased adoption of research approaches that move beyond collecting expert testament to embedding the knowledge of those whose lives or work are the subject of the study as part of the research process, there has been an increased awareness of the need for applied research to go beyond being predominantly a tool for knowledge collection, ie for research to be more directly connected to a change process; to make a difference to communities; to have an impact. It suggests that the wide and imprecise use of the term ‘participatory’ has, however, led to difficulties in articulating expected impact from such research practices. This creates difficulties in relation to recognising linkage between participation and impact and building a body of knowledge to share and learn about impact.
PUBLICATIONS:
Journal Articles (selected)
Lenette C, Stavropoulou N, Nunn C, Kong S.T, Cook T, Coddington K & Banks S. (2019) Brushed under the carpet: Examining the complexities of participatory research. Research for All, 3 (2): 161–79. DOI https://doi.org/10.18546/RFA.03.2.04
Cook T, Noone S & Thomson M (2019) Mindfulness‐based practices with family carers of adults with learning disability and behaviour that challenges in the UK: Participatory health research. Health Expectations 22, 802-812. https://doi.org/10.1111/hex.12914
Cook T, Brandon T, Zonouzi M & Thomson L (2019) Destabilising Equilibriums: harnessing the power of disruption in participatory action research Educational Action Research, 27:3, 379-395, DOI: 10.1080/09650792.2019.1618721
Harris J, Cook T, Gibbs L, Oetzel J, Salsberg J, Shinn C, Springett J, Wallerstein N & Wright M (2018). Searching for the Impact of Participation in Health and Health Research: Challenges and Methods. BioMed Research International, Vol 2018, Article ID 9427452
Cook T, Atkin, H & Wilcockson, J (2018). Participatory Research into Inclusive Practice: Improving Services for People with Long Term Neurological Conditions. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, Vol 19 (1) Art. 4.
Cook T, Boote J, Buckley N, Vougioukalou S & Wright, M (2017) Accessing Participatory Research Impact and Legacy: Developing the evidence base for participatory approaches in health research. Educational Action Research Vol 25 (4) pp473-488
Abma T, Cook T, Rämgård M, Kleba E, Harris J & Wallerstein N (2017) Social Impact of Participatory Health Research: Collaborative Non-linear processes of Knowledge Mobilisation. Educational Action Research Vol 25 (4) pp489-505
Cook T (2012) Where Participatory Approaches Meet Pragmatism in Funded (Health) Research: The Challenge of Finding Meaningful Spaces. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, Vol 13(1), Art. 18. DOI: http://dx.doi.org/10.17169/fqs-13.1.1783
Cook, T & Inglis, P (2012) Participatory research with men with learning disability: informed consent. Tizard Learning Disability Review. Vol 17 (2) pp 92 – 101
Cook, T (2009) The Purpose of Mess in Action Research: building rigour through a messy turn. Educational Action Research Vol 17(2) pp277-292.
Cook, T. (2006) Collaborative action research for development and evaluation: a good fit or the road to myopia? Evaluation Vol 12(4) pp418-436.
Cook, T. (2004) Reflecting and learning together: action research as a vital element of developing understanding and practice. Educational Action Research Vol 12 (1) pp77-97.
Cook, T. (1998) The Importance of Mess in Action Research. Educational Action Research Vol 6 (1) pp93-108.
Book Chapters
Abma T, Banks, S, Cook T, Dias S, Madsen, Springett J & Wright M. T (2019) Researching for Change. Participatory Approaches for Health and Wellbeing. Pub: Springer, Germany
Kongats K, Springett J, Wright M T & Cook T (2018) Demonstrating Impact in Participatory Health Research (2018) In Michael T Wright & Krystyna Kongats (eds) Participatory Health Research: Voices from Around the World. Springer: Berlin pp 55-69
Wright M T, Cook T, Springett J & Kongats K (2018) Building Consensus, Celebrating Diversity: The International Collaboration for Participatory Health Research. In Michael T Wright & Krystyna Kongats (eds) Participatory Health Research: Voices from Around the World. Springer: Berlin pp 17-24
Cook T (2016) Working at the intersection: partnerships as participatory mechanisms for disruption: In Jane Moore and Philp Bamber (eds) Teacher Education in Challenging Times: lessons for professionalism, partnership and practice. Taylor and Francis. Pp 83-93
Wright M. T, Cook T, Springett J, & Roche B. (2014) The International Collaboration for Participatory Health Research: Legitimating the Science and Ensuring Quality: In Thomas Stern, Andrew Townsend, Franz Rauch and Angela Schuster (eds) Action Research, Innovation and Change: International perspectives across disciplines London: Routledge
Cook T. (2011) Authentic Voice: The Role of Methodology and Method in Transformational Research: In Warren Kidd and Gerry Czerniawski (eds) The Student Voice Handbook Emerald Press pp 307-320
International Collaboration for Participatory Health Research Position Papers
International Collaboration for Participatory Health Research (ICPHR) (2013) Position Paper 1: What is Participatory Health Research? Editorial Group: Michael T. Wright, Germany (lead); Irma Brito, Portugal; Tina Cook, UK; Janet Harris, UK; Maria Elisabeth Kleba, Brazil; Wendy Madsen, Australia; Jane Springett, Canada; Tom Wakeford, UK www.icphr.org
International Collaboration for Participatory Health Research (ICPHR) (2013) Position Paper No. 2: Participatory Health Research. A guide to Ethical Principles and Practice Editorial Group: Sarah Banks, UK (lead); Irma Brito, Portugal; Tina Cook, UK; Felix Gradinger, UK; Jane Springett, Canada; Hella von Ungar, Germany; Michael Wright, Germany. www.icphr.org
International Collaboration for Participatory Health Research (ICPHR) (2020) Position Paper 3: Impact in Participatory Health Research (2020) Editorial Group: Tina Cook: UK (Lead), T. Abma, Netherlands, Tanja Gangarova, Germany, Janet Harris: UK, Siobhan Higgins: Ireland, John Oetzel: New Zealand, Sebastian von Peter,Germany, Brenda Roche, Canada, Payam Sheikhattari USA, Amy Schultz USA, Jane Springett Canada. Nina Wallerstein, New Mexico. www.icphr.org,
Boote, J. Cook, T and Harris, J (2012) International Collaboration for Participatory Health Research (ICPHR) INVOLVE Newsletter, Eastleigh, UK.