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Resources
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Books
Disrupting the Academy with Lived Experience-led Knowledge by M.Higgins and C. Lenette (Bristol University Press 2024)
This book firmly positions lived experience-led expertise as a unique and compelling form of knowledge in decolonising and disrupting research, teaching and advocacy. Based on the insights of people with first-hand experiences, each chapter presents unique accounts and reflections on a diverse range of social justice issues. Together, the authors’ perspectives centre lived experiences in the production of knowledge, challenge outsider-imposed views, and create new research and writing norms. They demonstrate that, when lived experience experts lead the way, their knowledge of how to address social injustices can enrich, transform and decolonise research, teaching and advocacy. This collection is an invaluable resource for academic and community-based researchers, practitioners, advocates, educators, policy makers, students and people whose lived experiences and views continue to be marginalised across diverse settings.
Available here: policy.bristoluniversitypress.co.uk/disrupting-the-academy-with-lived-experience-led-knowledge
A Handbook of Children and Young People's Participation, by B. Percy-Smith, N.P. Thomas, C. O'Kane and A.T. Imoh (Routledge, 2023)
The handbook (first edition published in 2010) focuses on discourses that enable us to advance thinking and practice to better understand what it means for participation to be transformational. The book explores theoretical approaches in the last decade, and the limitations of dominant participation approaches with children and young people in achieving genuine societal transformation. The handbook also focuses on how young people can be included as co-authors.
Available here: www.taylorfrancis.com/books/edit/10.4324/9781003367758/handbook-children-young-people-participation-barry-percy-smith-nigel-patrick-thomas-claire-kane-afua-twum-danso-imoh
Participatory Research for Health and Social Well-Being, by Abma, T., Banks, S., Cook, T., Dias, S., Madsen, W., Springett, J., Wright, M.T. (Springer, 2019)
This textbook is a comprehensive guide for students interested in using participatory research to improve people’s health and well-being. It is especially designed for those working in the fields of health and social welfare who are embarking on participatory research for the first time. It covers all phases in participatory research from “getting started,” to “acting for change,” “continuing the journey” and “articulating impact.”
Available as e-book https://www.springer.com/us/book/9783319931906
Co-producing research: a community development approach, edited by Sarah Banks, Angie Hart, Kate Pahl and Paul Ward (Policy Press, 2019)
Offering a critical examination of co-produced research, this book draws on experiences from an innovative project, Imagine – connecting communities through research. It outlines a community development approach, involving collaboration between diverse people/groups to develop communities of place, interest and identity. Contributors discuss the contribution of co-produced research to social justice outcomes in policy and practice settings - from art galleries to prisons. The book will be valuable for practitioners and academics interested in researching with communities, activists, and artists.
https://policy.bristoluniversitypress.co.uk/co-producing-research
Ethics in participatory research for health and social well-being: Cases and commentaries, edited by Sarah Banks and Mary Brydon-Miller (Abingdon, Routledge).
The book introduces the key ethical issues in participatory research, drawing on ethical theory and relevant literature before presenting 7 substantive chapters, each on a different theme, such as power, ownership, confidentiality and boundaries. The chapters feature an introductory overview of the topic with reference to the literature, followed by four real-life case examples written by participatory researchers and short commentaries on each case. Drawn from around the world (from Denmark to Tanzania), the cases illustrate a range of ethical issues, outlining how they were handled and the reflections and feelings of the contributors.
Further details can be found on this website. 20% discount is available if you order via this website, please enter the code FLR40 at checkout: www.routledge.com/Ethics-in-Participatory-Research-for-Health-and-Social-Well-Being-Cases/Banks-Brydon-Miller/p/book/9781138093430
Participatory Health Research: Voices from Around the World, edited by Michael T Wright and Krystyna Kongats.
This book explores core issues in participatory health research (PHR) and traces its global emergence as a force for improving health and well-being, healthcare services, and quality of life. The PHR approach is defined as including community members, health practitioners, and decision-makers as co-researchers, using local knowledge to reduce disparities in care, advocate for responsive health policy, and accelerate positive change in society as a whole. The book’s first half surveys themes essential to the development of the field, including evaluating PHR projects, training professionals in conducting PHR, and the ambitious work of the International Collaboration for Participatory Health Research. International perspectives showcase the varied roles of PHR in addressing urgent local health problems in their specific public health and sociocultural contexts.
Available at https://www.springer.com/la/book/9783319921761
Position Papers & Guides
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Dilemmas Cafés: A guide for facilitators
Sarah Banks (Centre for Social Justice and Community Action, Durham University). Publication funded by Durham University ESRC Impact Acceleration Account. |
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ICPHR Position Paper No. 1 - What is Participatory Health Research?
International Collaboration for Participatory Health Research (ICPHR) (2013) Position Paper 1: What is Participatory Health Research? Version: Mai 2013. Berlin: International Collaboration for Participatory Health Research. |
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ICPHR Position Paper No. 2 - Participatory Health Research - A Guide to Ethical Principles and Practice
International Collaboration for Participatory Health Research (ICPHR) (2013) Position Paper 2: Participatory Health Research: A Guide to Ethical Principals and Practice. Version: October 2013. Berlin: International Collaboration for Participatory Health Research. |
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ICPHR Position Paper No. 3: Impact in Participatory Health Research
International Collaboration for Participatory Health Research (ICPHR) (2020) Position Paper 3: Impact in Participatory Health Research. Version: March 2020. Berlin: International Collaboration for Participatory Health Research. |
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Impact in Participatory Health Research Summary Paper
This is a summary of Position Paper 3: Impact in Participatory Health Research, Version: March 2020 of the International Collaboration for Participatory Health Research. |
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Research Articles & Reports
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Mapping Alternative Impact: Alternative approaches to impact from co-produced research Rachel Pain, Kye Askins, Sarah Banks, Tina Cook, Grace Crawford, Lee Crookes, Stella Darby, Jill Heslop, Adam Holden, Maxine Houston, Jennifer Jeffes, Zoe Lambert, Louise McGlen, Clare McGlynn, Jo Ozga, Ruth Raynor, Yvonne Robinson, Sue Shaw, Cheryl Stewart, Dave Vanderhoven. |
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Useful Links & Websites
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International Collaboration for Participatory Health Research
http://www.icphr.org The ICPHR promote participatory research to address health inequalities, particularly in communities where the occurrence and severity of health problems is greatest. |
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Centre for Social Justice and Community Action
https://www.dur.ac.uk/beacon/socialjustice/ The Centre for Social Justice and Community Action, Durham University, UK provides training, events and resources in Participatory Action Research. |
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Investing in Children
http://www.investinginchildren.net IiC provides research & participation services to organisations that work with children & young people & share our commitment to their human rights. |
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Patricia Maguire
https://www.patriciamaguire.net Patricia Maguire's website contains easily downloadable resources related to Feminist Participatory Research and feminist-informed Educational and Teacher Action Research. |
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Participatory Action Research - Feminist Trailblazers & Good Troublemakers
https://www.parfemtrailblazers.net/ The companion site to the podcast, Participatory Action Research Feminist Trailblazers and Good Troublemakers. We talk with feminists PAR Trailblazers about their work, struggles, and successes bringing feminist values and ways of being to PAR. |
Member Reading Suggestions
This section provides suggestions for reading from UKPRN members, with their reasons for choosing. If you are a UKPRN member and would like to make a suggestion for this list, please complete the form below.
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Toby Brandon
Childers, S. M. (2012) Against Simplicity, Against Ethics: Analytics of Disruption as Quasi-Methodology. Qualitative Inquiry, 18(9), 752–761. https://doi.org/10.1177/1077800412453015 |
I found this paper interesting as it challenged my own assumptions about the value of qualitative analysis. The aim tends to be making order from chaos. ‘I envisioned myself taking a pair of scissors to my transcripts and field notes, literally leaving behind on the cutting room floor those interesting pieces of data that were disrupting arguments or causing undue anxiety’ (Childers, 2012:752).
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Phil Taylor
Heron, J., & Reason, P. (1997) A Participatory Inquiry Paradigm. Qualitative Inquiry, 3(3), 274–294. https://doi.org/10.1177/107780049700300302 |
Written over 20 years ago this paper remains, for me, one of the most influential for shaping and continually developing an understanding and appreciation of participatory inquiry. 'Our knowing of the world is consummated as our action in the world, and participatory research is thus essentially transformative' (Heron and Reason, 1997, p.288).
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Tina Cook
Sumara, D. J., & Luce‐Kapler, R. (1993). Action Research as a Writerly Text: Locating co‐labouring in collaboration. Educational Action Research, 1(3), 387–395. https://doi.org/10.1080/0965079930010305 |
This paper is one I still draw on to this day. When I first read it I was struggling with ways of understanding research that did not fix it as a means of producing an outcome - a fixed outcome - but recognised it as a stepping stone for generating more uncertainty and more understanding. The concept of the writerly text was illuminating (even though my engagement in it was challenging during my doctoral journey). Challenge is, for me however, at the heart of research and the creation of new knowledge. Challenge to think differently and to act differently. Sumara and Luce-Kapler's definition of co-labouring perfectly encapsulates what happens at the heart of radical and meaningful research. Co-labouring involves engaging in 'toil, distress, trouble: exertions of the faculties of the body or mind … an activity which is at times likely to be uncomfortable' (Sumara and Luce-Kapler 1993:393).
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